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2011-10-13 digital edition

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2011-10-13 / Community News

Benefit for Cody and Kayla Ruthven

Scott Ruthven and wife Dena, formerly of Lexington, are presently living in Nashville, Tennessee. He is the son of Jack and Trink Ruthven of the Lexington area. Scott and Dena have two children, Cody, 15, and Kayla, 11.

Jack Ruthven had a niece, Lanna Jo Ruthven, (1982-2002; the daughter of Lanny and Linda Ruthven of Lexington), who was diagnosed with Niemann-Pick Type C. This genetic abnormality can only occur when both parents are carriers of the disease. The disease is rare and deadly. There are approximately 300 confirmed cases worldwide. Scott and Dena were very aware of Lanna Jo’s illness and they made sure that Niemann-Pick was part of the family medical history required by doctors.

There were clear indications in 2009 that Cody’s speech was slower and had become a bit slurred. He walked differently, his balance was off and he was having some learning difficulties in school. On January 28, 2011, Cody was diagnosed with Niemann-Pick Type C. Because Kayla had started to exhibit some symptoms, she too was tested. The results were the same.

The prognosis is poor for both Cody and Kayla and time is of the essence. They are both taking an experimental drug that has been shown to slow the progression of the disease in some patients, but a cure has yet to be found. The internet will give you more information and a video on You Tube by Doctor Mark Patterson at Mayo Clinic can also give you more technical aspects of this disease.

The financial and occupational needs will be overwhelming for Scott and Dena. Dena will need to leave employment to care for Cody’s daily needs, then later for Kayla’s. Scott travels out of state extensively, making it necessary for them to move back to this area to have much needed help from their families. They have no vehicle equipped for two wheel chair patients, and the list goes on and on.

A Benefit will be held on Saturday, October 22, at the SPJST Hall in Elgin beginning at 4 p.m. with a barbecue meal. It will include a general store, a silent auction and a live auction. Entertainment will be provided by recording artist Darryl Worley, beginning at 8 p.m. The Memphis-born singer has released six albums; the latest entitled Sounds Like Life. Worley has had 18 singles on the Billboard Hot Country Songs Charts, including three number one hits in I Miss My Friend, Awful Beautiful Life, and Have You Forgotten. Tickets are $25 each; Drive-Through Meal - $10.

An account has been set up for Cody and Kayla at the Elgin Frontier Bank through Knobbs Springs Baptist Church. Your tax deductible contribution should be made payable to KSBC with Cody and Kayla Benefit in the memo section and can be sent to 1662 CR 305, McDade, Texas 78650.

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